MTHFR and Pyroluria Adventure Part 9: More Flux and Checking in with the Doctor

It's so become and adventure! An adventure with numerous rollercoasters and dizzy spells. Especially since seeing the native American healer (let's call him W) and putting colloidal silver in my eyes, nose and ears twice a day. I love it! It makes me feel funny, in a good way. And all rather cleaned out.

I've also found it's awesome for my skin! I get pimples, which initially improved a lot since upping my zinc, but then got worse once my body started detoxing. Doctor and fellow MTHFRs tell me these breakouts are normal. Way to help it is to take more vitamin C (up to 6000mg a day my Dr said) and liver support supplements like milk thistle. I've found that to be good advice, they make a real difference.

So I saw my MTHFR/pyrrole doctor yesterday. First time since starting the supplements. I told him about my weird and disturbing array of new symptoms, namely:
- The burn like-marks on my arms and pigmentation on my hands that just appear overnight.
- My menstrual cycle suddenly changing from 28 days to 21 days (wtf's with that?)
- The fact that despite having some AMAZING days, most of the time I feel weak and hypersensitive to stimulation.
- Despite feeling 'worse' most of the time I actually feel 'better'. I think that's because my mood has improved, so I just roll with whatever I'm feeling a lot of the time, as long as I can get the rest and quiet I need to not fall to pieces.

Doctor replied by saying I have a 'complicated biochemistry'. That my experience initially will be two steps forward one step back. That most of what I've described are signs of my body detoxing heavy metals which it hasn't been able to do effectively prior to taking the supplements (you need good methylation to detoxify). The burn-like marks on my arm and pigmentation, he said, were likely just that, heavy metal detoxification through my skin (kinda weird hearing a 'normal' doctor say stuff like that, stuff that if I mentioned to my regular GP, would cause much rolling of eyeballs once I left the room, maybe even before I left the room). He also said I'm likely detoxing pathogenic bacteria and parasites. Good stuff.

I chickened out of telling him I saw W, the native American healer, but instead asked him if he thought my body was overwhelmed by the supplements and should I cut back. He said no.

I say yes, lol. Only because since seeing W if I take my full dose of supplements I feel like I'm having a prolonged panic attack. Heart races. Can't sleep. It's like the very first time I took a full dose. Like it's too much for me. And it's not like that's a result of W's protocol of liquid minerals and MMS, no, all this started immediately after seeing W and for 4 days before I even started his protocol (other than the colloidal silver, which I doubt would have that kind of affect).

So my plan of attack is to talk to W and see what he thinks. And in the meantime cut back on my MTHFR/pyrrole supplements to an amount that doesn't make me feel like I have electricity coursing through my body.

I'd like to say more about my experience so far of W's protocol...but I need to study! I will say that I love the MMS! And that rubbing it under my arms (as instructed) works better than any deodorant I've ever used! Yes!! *fistpump* (I hate deodorants, I find they're either toxic, non-toxic but ineffective; non-toxic, effective but overly fragranced; or non-toxic, effective, fragrance free and super -expensive).

Life is good.

MTHFR and Pyroluria Adventure Part 8: Shamanism Anyone?

So today I saw a native American healer. Partly out of curiosity; this person has come into my life and I wanted to see what they thought of where my health is at, and partly because the 'crap days' get really wearying; maybe I'm still detoxing and maybe this process takes time, but man I just want to feel better a bit more consistently than I am. I'm EXHAUSTED, mentally and physically so much of the time.

So I saw him. He seemed to think I was in quite a state. My energy field (I imagine that's the same thing as an aura) he said was very close into my body where it should extend out much further. He told me I was very low in copper, selenium, which I know to be correct, and one other trace mineral I can't remember. He told me I have an overgrowth of fungus and parasites in numerous places in my body, that doesn't surprise me at all. He also told me that my body is being overwhelmed by the supplements I'm currently taking and they are building up in my body and that is what is causing the weird marks on my arm. He also said they had been causing my veins to constrict which has been impacting on my stamina. That also doesn't surprise me! Lol.

So he did some energy healing things which I could feel doing...something. Then his wife dropped colloidal silver in my eyes, ears and nostrils, that felt great. And then he prescribed me some much much much more affordable supplements to take; all in liquid form. Namely colloidal silver, MMS, zinc, chromium, a multi-trace mineral, and something called CMD. He says I should feel a lot different very quickly and that I'll only need to take these things for a month or so and that if anyone ever puts me on something that they say I'll need to take for the 'rest of my life' I should be questioning that.

For the rest of the day I'm not meant to lift anything and am meant to rest.

Exciting times.

MTHFR and Pyroluria Adventure - Part 7: Rough Days With Silvery Edges.

Thought I would try and post today because, normally, if I feel like I have the past few days, I wouldn’t normally be up to posting due to feeling exhausted and unable to focus. Even if all I’m doing is staying home all day, exhausted.

This has been happening since I took that damn Doxycycline back in May. It’s like I get flashbacks of what that bad reaction was like every time I get hormonal, which for me is just over two weeks a cycle. And what makes things a bit extra intense just lately is that since taking the MTHFR/pyrrole supplementation my cycle has suddenly gone from being 4 weeks long to 3 weeks long! Lol! So for less than a week every three weeks I feel really fucking good. Amazing. And then for a bit over two weeks I feel a range of not so great to completely exhausted and please don’t talk to me because your voice feels like burning. Yup. LOL! Madness!

I will say, however, that what has improved with taking the supplements is my ability to deal with feeling fucked. I don’t feel suicidal or utterly hopeless like I did while taking the Doxycycline or in the PMS periods after taking Doxy but before starting on the supplements. So that is awesome news! What I do feel is extreme fatigue and unable to handle much stimulation. Like someone talking to me, that quickly becomes unbearable. It’s kind of embarrassing, someone will be talking to me and all of the sudden I’ll ‘hit capacity’, as I tend to refer to it, and then my eyes will start to get all watery and I’ll feel rather anxious to escape. Same happens if I go shopping or have to make a lot of decisions. I also can’t seem to handle listening to music for very long or wearing tight or irritating fabrics. Lol! I sound all a bit on the autistic spectrum! Actually that doesn’t sound that crazy considering the research I’ve read into the connection between gut dysbiosis and leaky gut with autistic symptoms (like this: http://www.nleducation.co.uk/resources/abstracts/dysbiosis-in-autism-more-evidence-confirms-association/)

…hmm, interesting. Doing work for college I can handle in small doses if I don’t have to think too much.

So yes. Today is one of the more fucked days. Need to go to the shops but just can’t bring myself to get in the car. Too tired and it feels like my adrenals are writhing, all tender. I’ve also had some weird-ass detoxification symptoms pop up this past week. What looks like burns have suddenly appeared on my arm…I don’t remember burning myself. I might be prone to dissociation but except for the few quite profound episodes I’ve had, I always remember when I hurt myself and I’m quite sure that hasn’t happened this week! If it wasn’t for the fact that despite feeling all the crap stuff I’m also feeling a lot better in a lot of ways, I’d be a bit concerned. I trust it’s all just part of detoxifying, will check with my doctor soon though.

However, although it all sounds pretty bad, good things have been happening! Before this unawesome period started my skin and eyes started to look really quite amazing. I’m not even sure what it was, all I know is that I would look in the mirror and think “wow, I look different, I look better!” And when I have my feeling good days they are feeling amazing days! And I’m feeling a LOT better about my hair thanks to finally dishing out the money to try Morrocco Method. I highly recommend those products and the advice they give, like their regular hair brushing technique (even for curly hair like mine) and instructions on how to cut your own hair, which I did this week! And I love it! :D

The other good things are that my muscle mass is slowly returning and I (when feeling well) have more strength. I’ve upped my weights at the gym and am finding myself walking more, when for most of last term going to the gym meant I couldn’t do anything else for the rest of the day, not even study. And walking to the station to get the train just seemed out of the question if I wanted to be able to concentrate at college.

I think what is also helping is knowing I have more tricks up my sleeve. This Sunday I have a session with a native American healer who I’ve come to know through friends. I’m not sure what to expect other than from the stories he’s told us it sounds like there’s little he can’t help heal. Considering how not good I’m feeling now Sunday can’t come soon enough! Don’t want to get my hopes up though. But I’m very curious as to what he’s going to pick up on and what he’s going to recommend I do to heal.

And if that doesn’t work there is another quite remarkable sounding practitioner I would like to work with; Donal Carr at Place of Chi. He’s Australia’s most qualified CHEK Practitioner and has worked with many professional athletes and Olympians struggling with everything from chronic fatigue and serious physical injury. I saw him yesterday for a introductory consult and I would love to take up his offer to work with me but what with college and working until Christmas I think that will have to wait. I also want to wait until after working with Wolf on Sunday. Who knows, I might be all better soon! Lol! Ahh…that would be awesome. Even if I am feeling better I would still like to work with Donal. I love the sound of the CHEK system (created by Paul Chek) and would like to experience it first hand and consider practitioner training in future.

And if those two things don’t work, I still have something else up my sleeve to try but I won’t talk about it yet.

So yes. Good stuff happening despite feeling crap most of the time! Lots of exciting options that keep me hopeful and optimistic.

Now for an epson salt bath to help with this detoxing process.